Introduction

 As a newbie to the World of Blogging, please bare with me.  I'm on my second cup of coffee and I still feel groggy.  My thought process is all out of sorts.  But since this is my first post, I figure I have nothing to lose.  Why not get the show on the road?

I have both APS and Lupus, Systemic Lupus Erythematosus to be exact.  I was diagnosed with both in late Summer/early Fall of 2012.  Long before the diagnosis, I had three blood clots (Two in April of 2000), three seizures (one is open to interpretation), MS-like symptoms, dizziness, and plenty of nausea.  Didn't get the proper diagnosis throughout those years in between. The only specialist I was seeing was a Neurologist.  A true asshole and an embarrassment to those in the medical field.  My six month appointments went like clockwork.  His eyes constantly in the computer, reading my notes.  As if he had no idea who I was.  Eventually, he would ask one question concerning any seizures.  If you presented him with new or old health concerns, he would do the following: adjust your medications or change them.  No tests what so-ever.  Medication only.  

I'm not sure what is worse, having Doctors who don't listen, care or force you to validate your health conditions, most importantly, validate your diagnoses.  My first appointment with my new Rheumatologist last December was one that will always stay with me.  As I stood up for myself.  But not at first.  Since we live in a World when Doctors/Healthcare Providers ask for your opinions, I didn't hold back.  The validation issue was first on my agenda.  Next, his "bedside" manner, questioning everything when I explained behaviors that may be associated with my cyst against my Hippocampus in the brain.  He didn't see it in my file and challenged me to validate it.  In the weeks that followed, I emailed my Neuro-Psych Evaluation from 2012, explaining everything he needed to know about my cyst.  Chew on that moron.

I will try to update my blog on a weekly basis.  My book, "Deceived From Within: Living with APS and Lupus" is available and can be found on Amazon and Barnes & Noble.  Bare with me as chances are good that I will be promoting my book with every post.  I have plenty of time on my hands.  And I enjoy pushing myself.  Finding new ways how I can promote my book.

Until then, take care and THANK YOU for reading my post.



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